Researchers are surveying people living with metastatic breast cancer about how they make treatment decisions. If this applies to you, please consider taking the survey. Their deadline for the survey is November 11. Thanks so much.
It’s vitally important not just to feature breast cancer charities, but for me, particularly, to feature charities that focus on Inflammatory Breast Cancer (which I have) which is a rare and deadly breast cancer.
As I’ve said before, IBC typically presents differently than “regular” breast cancer does. A woman with IBC may not have a lump at all, and it’s often misdiagnosed as a breast infection such as mastitis. Women who have features of IBC that don’t go away need to be vigilant in asking their doctors for tests that will identify breast cancer. Often IBC doesn’t even show up on a mammogram.
Enter Terry Lynn Arnold, an IBC survivor. She is so passionate about educating people about IBC that she founded The IBC Network Foundation. The goals of The IBC Network Foundation are, as its website states:
To fund research regarding Inflammatory Breast Cancer.
To provide an avenue to network proactive education to the general population as well as the medical community regarding Inflammatory Breast Cancer.
To offer college scholarship for students who have been impacted by this diagnosis of this aggressive cancer as a way to show support to our Inflammatory Breast Cancer community.
This is a relatively new organization which could sorely use funds to help their efforts. I fully support The IBC Network Foundation and am impressed with the work that Terry Lynn has already accomplished through this foundation. Instead of buying pink items this October, why not send a few dollars to The IBC Network Foundation? Every little bit helps.
Way to go, Terry Lynn, on establishing this foundation and on working to educate people about IBC. As I said, I’m impressed. :)
Cross-posted to Just Enjoy Him.
I recently had the honor of meeting the founder of My Hope Chest which is located in Seminole, FL. Alisa Savoretti, former Las Vegas showgirl, founded My Hope Chest to provide funding for breast cancer survivors who are uninsured, underinsured, or have somehow fallen through the cracks of a system that’s supposed to provide reconstruction if a woman has had a mastectomy.
Alisa was faced with this very dilemma herself in the Fall of 2003 when she had no insurance, had to have a mastectomy, and then was unable to take, as she says:
the final step in breast cancer treatment – restoring body, mind and spirit.
As someone who herself had a mastectomy and then, surprisingly, felt unwhole and ugly without one of my breasts, I underwent three surgeries and several procedures to reconstruct my left breast. I was still left with $4,000.00 that my husband and I have to pay to the hospital out-of-pocket. I appreciate what Alisa and her board do.
Alisa told me that everyone who works with My Hope Chest is a volunteer and the funds go to providing surgeries for women in need. She also told me that this calendar year, they were able to provide surgeries for six women. Remarkable for a small, grassroots organization!
Bravo, Alisa! While I know that reconstruction isn’t for everyone, I believe that women who want their breast(s) reconstucted should have that opportunity.
Cross-posted to Just Enjoy Him.