December 7, 2009
It’s nearly time.
Jenni, we love you, we miss you, we wish you peace and freedom from all the pain and suffering. Goodbye, good friend.
David, you will always be welcome here with us. We send you strength, and the freedom to admit weakness, and most of all, pure, simple love, the love that all mothers have for all children, and that you and Jenni have for Jack and Jamie. May little Jack grow up knowing how important his mother was to women all around the world, and how very much we learned from her.
Peace be with you all.
10 Comments |
Children, Colon cancer, Health, Hospice, Jen B, Legacy, Support, When treatment isn't enough |
Permalink
Posted by whymommy
December 6, 2009
I have been welcomed to the world of lymphedema. After I was diagnosed and had surgery my surgeon briefly talked to me about it but said that none of her patients got lymphedema. I thought I was safe, thinking I would not have a problem with it. I was wrong, I have been suffering from it for some months now and did not realize it. I am suffering from mostly truncal lymphedema. Like Stella my symptoms are mostly pain with a bit of swelling. I have made lots of trips to my oncologist complaining about my pain and was worried that my cancer had come back. Little did I know that lymphedema is very painful. Something I was not told before. I have been to a therapist 4 times now and it seems to be working for me. I am educating my self on how to move my lymphatic fluid that builds up under my arm and in my back. I have been fitted for a sleeve and a vest as well. I will be interested to see how the vest works, I will be wearing it at night and am hoping that I will sleep more comfortably.
The signs of lymphedema may include:
- swelling in the breast, chest, shoulder, arm, or hand
- area feels full or heavy
- skin changes texture, feels tight or hard, or looks red
- new aching or discomfort in the area
- less movement or flexibility in nearby joints, such as your shoulder, hand, or wrist
- trouble fitting your arm into jacket or shirt sleeves
- bra doesn’t fit the same
- ring, watch, and/or bracelet feels tight but you have not gained weight
Early on, the lymphedema may be relieved by raising the affected limb and the skin usually stays soft. But over time, the swollen area may become hot and red and the skin hard and stiff.
Here is a link with more information that is very helpful. My advise is to educate yourself, know the signs of lymphedema and know your body. Talk to your doctor and be persistent. My doctor told me I did not have a problem but the lymphedema doctor saw my problem right away.
Message, the right kind of message is the key, I was not educated and was not doing my message correctly. If you do have signs of lymphedema get to a good certified lymphedema therapist right away. Your doctor should have a list of good therapists in your area. I feel more relaxed now and know why I have this pain. The pain isn’t fun but I am comforted by the fact that I know what is causing it and am getting the tools to deal with it.
1 Comment |
Breast cancer, Health, Lymphedema, Sarah, Treatment, mastectomy, survivorship | Tagged: Breast cancer, lymphedema therapy |
Permalink
Posted by sprucehillfarm
October 30, 2009
Happy November, everyone! Although we’re still a day or two away, I couldn’t WAIT to set up this month’s check-in! How are you? How’s treatment? Recovery? Mothering? If you haven’t posted in the last couple weeks, or if you just want to leave an update, this is a great place to do it!
Also check out the latest from our group blog:
Frankenlefty has left the building (by ThrowsLikeAGirl)
Death be not proud (by Rivka)
More birthdays, please! (by Susan)
Courage (by Sarah)
Benefit or burden? (by Stella)
I’m home (by Lyn)
Everyone is welcome to leave a comment on this monthly check-in post, to ask questions, to share concerns, and to leave notes of support, whether you currently are a writer for this blog or not. We’re a community ’round these parts, and this is one of the big places we act like one.
Now go hug those little goblins, and have a Happy Halloween!
16 Comments |
Community, Friends (and how to help), Health, Roll Call, Treatment, survivorship | Tagged: cancer |
Permalink
Posted by whymommy