missed milestones (by Laurie)

December 3, 2009

This  year, two dates -  November 24th (the anniversary of my diagnosis of metastatic breast cancer) and December 2nd (the anniversary of the night I found the first lump) – came and went without causing me the anxiety of previous years. I noted both events in passing, took the time to breathe deeply and be grateful, and then got on with my day.

It’s been four years since I found the lump. It’s been three since the cancer spread to my liver. And it’s been two and a half years since my first clean scan.

I had an appointment with my oncologist yesterday. I had nothing to tell him. He said, “Shall we keep dragging you in here every few months just to say ‘hi’?”

I readily agreed.

I have chemo next week. They’ve been building a new treatment centre for what seems like years. I have often jokingly pointed in the direction of the new building and said, “They’re building that for me.”

Yesterday, I discovered that the new building is open and the chemo room has been moved. No more listening to the sounds of construction during treatment. No more listening to the intimate details of the constitutional issues of the patient beside me. There will be a little more light and a little more room and hopefully, a little less noise.

I’m kind of excited.

And yes, that is somewhat ironic. I have lived long enough to be excited about getting chemo in the new building.


Courage

October 14, 2009

“Courage doesn’t always roar.  Sometimes courage is the little voice at the end of the day that says I’ll try again tomorrow.”  ~Mary Anne Radmacher

courage night 135

On Friday my support group for young breast cancer survivors BCAUSE held it’s annual Courage Night. BCAUSE stands for Breast Cancer and U Support and Encouragement. Courage night  is a special night when we celebrate being breast cancer survivors. There are not many things to celebrate about having breast cancer, but once a year we all gather together for a party in our honor. It’s kind of like a big group birthday party. A celebration of life.

I am very lucky to have such a tight circle of strong woman to talk to, to lean on, and to celebrate with. I feel twice as blessed because of my online support group, Mothers With Cancer. I refer to my support groups as my “home” support group and Mothers With Cancer as my “bloggy” support group. 

We had a special speaker, Geralyn Lucas author of Why I Wore Lipstick To My Mastectomy. What a treat it was to meet her. She was so gracious and eloquent, a very kind and genuine person. She read an excerpt from her book, it was hard to listen with dry eyes. It was such a wonderful thing for her to be there. Traveling and making a special trip here to our little town to celebrate with us. She stepped into our group just as if she knew all of us personally.

It was a bitter sweet night. One of our founding members lost her battle with  Metastatic breast cancer last spring and it was our first courage night with out her there. She lived for ten years with metastatic breast cancer. We really missed her but I have a feeling she was there smiling down on all of us, happy that we could all be there joined together in a sisterhood of strength.

I can’t imagine not having someone to talk to while going through a thing as terrible as cancer. Knowing that there is someone just a phone call or a key board away has made a big difference in my life. I am very thankful for the friendships and strong bonds I have with these brave and courageous woman. If it were not for my cancer diagnosis I would have never had the privilege of meeting these wonderful young woman. breast cancer, any cancer for that matter is not a walk in the park. I would never ask for it. I am however blessed with a network of friends that I know are always just a click away. These woman have taught me a lot about life and living. Living with cancer, being happy in spite of it. It makes all the difference for me, it makes everyday easier to put my feet down on the floor and continue to fight.

Posted by Spruce Hill


Have Boobs, Will Travel

August 21, 2009

The day after my mastectomy I was released from the hospital with a nearly concave left chest and a drainage tube at each end of the incision that ran from mid-chest to under my arm, stopping just short of my back.  I looked like a Cyborg.

Not until I saw my surgeon ten days later and had both tubes removed was I able to get a special bra with a puff to “even things out”.  Which hadn’t been such a big deal because I really wasn’t feeling wearing anything remotely nice with plastic sucky thingies protruding from my body, but I was excited when I was finally allowed to get a post-surgical bra.

I liken it to getting a training bra.  It looked kind of like one and came in sizes such as small, medium, etc.  The assistant in the Women’s Resource Center looked at my ta (the singular of tatas), nodded her head and said, “Medium bra, small puff”.   Whatever.  I couldn’t be sad about the “small puff” comment because small was better than nothing, which is what I had on the left side.  I couldn’t wait to get home and put on my new bra with the insert to see how my tops looked.

Running to my room like a kid at Christmas, I practically threw off the shirt I was wearing.  I had already ripped the packaging off the puff in the car and stuffed it into the convenient pocket of my new best friend.  I fastened the clasp, adjusted the straps and looked in the mirror only to be totally deflated (no pun intended).  The “small puff” was too big!  It didn’t even me out, it just made me lopsided in the opposite direction.  So I pulled out the filling until it was just about the right size.  I guess that would be extra small.

The humiliation didn’t end there, though.  A couple weeks later when I received my chemo-port the professional staff had to keep asking me which side I’d had my mastectomy on.  Really?  I chronicled that experience here (which also includes me on drugs) because if I’m going to share one embarrassing moment I might as well go the whole way.

Finally I was given the go ahead to get a real mastectomy bra and prosthesis.  Barbara Graves Intimates in Little Rock is one of the few shops in the area that have mastectomy merchandise so my friend, Beth, and I decided to go into town for dinner and a boob.  

Prescription in hand, we weaved our way through the beautiful lingerie that wouldn’t work well on a uniboob and found the very pleasant fit specialist.  She took us to the prosthesis room with boxes and boxes of silicone blobs and asked my cup size.  I didn’t want to say Almost-a-Boob so instead I came out and told her what I was thinking.

I knew I would eventually have reconstruction and was fairly certain I would have a prophylactic mastectomy at that time.  If I was going to go through all that trouble you could be sure I’d be making the surgeon earn his money.   So instead of matching up my right breast I wanted to see what it would be like as a larger version of me.  The problem, however, is that insurance will only pay for one prosthesis if you had a single mastectomy and those puppies are expensive.

That’s when the helpful lady told me it’s very common for women to return their “breasts” after reconstruction.  The foobs (fake + boobs = foobs) are then cleaned and sterilized and given to women with no insurance.  So Blue Cross/Blue Shield bought a regular foob for me and Barbara Graves donated a filler foob for the other side.  And a happy day it was when I could proudly stuff my bra and not feel like a fraud.

The Girls (as Beth named them) were treated very special.  Every night they had to come out of their pocket, get washed and then put to bed in their cradle.  Seriously, that’s what the box was called.  A cradle.  Sometimes they were hot and sometimes they were heavy and sometimes they misbehaved abominably – like when I went swimming at the YMCA in my new mastectomy swimsuit and the Girls decided they’d rather swim around my waist instead of stay where they were supposed to – but for the most part they were my good friends.  They did their part to make me feel a little more normal than I otherwise would have.  That is until late December 2006 when I put them away for the last time and had reconstruction.

We had moved to Pennsylvania six months before my reconstruction so I wasn’t able to drop the Girls off at Barbara Graves when I happened to be out running errands.  They slept peacefully in their boxes on the shelf of my closet for two-and-a-half years.  And then a month ago we drove down to Arkansas for a visit.

Instead of luggage in the back of the car, we had our dog.  The luggage had to go in a special travel bag on top which had to be taken off and put inside the car during our overnight stay on the way down and the way back.  Along with the luggage was a bag full of mastectomy bras and camisoles and two boxes with breast prostheses in them.  When we stopped on our way down the guys were taking everything out of the bag – a bit of a pain – and I heard Todd tell Taylor, “Well at least we won’t be bringing mom’s boobs home with us.”  Because, you know, they were so large and unwieldy.

While on vacation my mother and I ran into Little Rock one day and I took all the mastectomy paraphernalia with me.  We drove up to Barbara Graves, I walked in with all my goodies and the attendants seemed as appreciative as if I’d donated a bajillion dollars.  Or maybe a couple grand.  And it made me happy.  Maybe now some woman with crummy or no insurance will be able to feel a little more normal than she otherwise would have.

Cross-posted at Jenster’s Musings


Chemotherapy Induced Time Travel

March 29, 2009

(crossposted from Coffee and Chemo)

My son and I were sitting down for an afternoon snack together.

Suddenly, I had a major hot flash!

I explained that my drug induced menopause caused it. I then elaborated that women usually go through menopause around age 50.

“You mean,” my son asked, with a twinkle in his eye, “you went forward in time?!”


Why is that funny?

March 17, 2009

(cross posted, and edited a bit, from Coffee and Chemo)
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On our way home tonight, tired and giddy, my kids and I were laughing about the whole cancer thing. (I know it sounds strange but, trust me, it was funny)

“What is a support group?” asked my youngest daughter.

My eldest daughter jumped in and answered that my support group is “for women with cancer.”

“Not just any old cancer,” I pointed out.

“OK, women with breast cancer,” my eldest corrected herself.

“Not necessarily breast cancer,” I corrected her this time, “women with metastasis.”

“What’s metastasis?” my youngest asked, still confused.

Here, my son jumped in “cancer that is not going away.”

It might sound like a heavy conversation, but it was really quite lighthearted.

I mentioned that, earlier in the day, my sister mercilessly referred to my group as “poor, sick people who sit around talking about cancer.” my eldest, my son, and I burst out laughing.

“Why is that funny?” my youngest asked, even more confused.

“It’s not,” I answered, after a brief pause…. “which is why it is so funny!”

And we burst out laughing some more.