missed milestones (by Laurie)

December 3, 2009

This  year, two dates –  November 24th (the anniversary of my diagnosis of metastatic breast cancer) and December 2nd (the anniversary of the night I found the first lump) – came and went without causing me the anxiety of previous years. I noted both events in passing, took the time to breathe deeply and be grateful, and then got on with my day.

It’s been four years since I found the lump. It’s been three since the cancer spread to my liver. And it’s been two and a half years since my first clean scan.

I had an appointment with my oncologist yesterday. I had nothing to tell him. He said, “Shall we keep dragging you in here every few months just to say ‘hi’?”

I readily agreed.

I have chemo next week. They’ve been building a new treatment centre for what seems like years. I have often jokingly pointed in the direction of the new building and said, “They’re building that for me.”

Yesterday, I discovered that the new building is open and the chemo room has been moved. No more listening to the sounds of construction during treatment. No more listening to the intimate details of the constitutional issues of the patient beside me. There will be a little more light and a little more room and hopefully, a little less noise.

I’m kind of excited.

And yes, that is somewhat ironic. I have lived long enough to be excited about getting chemo in the new building.


PR for MWC

January 16, 2009

I was approached in October by Worlds Health News Today. They wanted to interview me and my daughter regarding our involvement with Kids Konnected. While filming that piece I spoke about this site, the blogosphere and the support it can provide. Nancy – the interviewer was interested and she later contacted me about doing a piece on blogging and health.

We tried to involve more of our ”Mothers”, but the WHNT is based in Irvine, CA and the next closest member is about 4 or 5 hours away. The piece aired today on cable but you can go here

I was hoping “WhyMommy” would have received more credit being the brainchild behind this site, but it ended up on the editing floor.

Overall, I am happy with the piece (Mario was pleased with his airtime) and I hope the other contributors are also.

As I mentioned in the piece – whether it is 2:00 am and you can’t sleep, 10 in the morning when the kids are in school, check in whenever you need us…

We are MotherswithCancer…

Cross-posted at marybethvolpini


friend as client or client as friend

September 18, 2008

The bell rang and I just thought it was my nanny forgetting her keys again, but no. There before my eyes was a dear friend that I had not seen in months. Later that same week my girlfriend I call Roomie called and had a watershed moment. Not a moment could be found after that, about wanting to get on the first plane to the states, because I missed my room-mate so dearly.

Just when I was feeling lonely because my silly little car had a flat tire and I did not have the strength to turn a lug nut. I waited out side my door for the road service person. While the gentleman fixed my flat tire, along strolls my Irish friend with a big hug and a how are you.  I retort: Fine, what are you doing in my neck of the woods today? She said:Didn’t you remember you have physical therapy. I said yes I just don’t know who is going to show up. She and I had a good laugh, because it was her. She is officially my new physical therapist. She said there was something great about having a friend as a client or was it client as a friend. Either way it was a win win situation for both of us.

I thanked the AAA road service gentleman, and we were on our way to have a good catch up chat  during the treatment and knowing that she gets paid to visit and I have a constant time to see her weekly. It’s a perfect situation. I am so happy I could burst!


Stick to your goals!

September 10, 2008

Do not alter your ambitions to match the ambitions of others. Stick to your goals! Well that was my Horror-scope today, and as I screen through what other mom bloggers are writing about, I ponder if my blog is interesting enough or down right stale.

I hear the school children play baseball in the park below my house and I stop for more than a few moments and enjoy the sounds of cheering children, cheering for their classmates and fellow team members. Then I am really drawn in as if it is the world series, I found myself cheering.

Then it struck me…

This is my goal. Not only do I want to blog about breast cancer, but I also want to cheer for the other players- IE. researcher, docs and specialists and I want to be drawn in enough to find myself cheering for each and every individual on the field of cancer… people like  the children below in the park.

So I am taking the plunge and agreed to read the contract for Trusera. I hope to start cheering /blogging as soon as possible. For those who have be following this process, thanks for your input. I will look out for all the pitfalls that are suggested.


flying high on the good news

September 8, 2008

http://cancervisa.wordpress.com/2008/07/14/blood-levels-are-up-and-my-tumor-markers-are-down/

More good news, tumor marker only 52 point off of what is considered normal.  25 is normal, I have 77. I just wanted to share and spread the love and joy I am feeling. I can’t wait to let my family know that their diligent prayers are working!


inspired by Philly gig

September 4, 2008

I was happily inspired to see some of the gals getting lime light on what my ex use to call the Rubber Chicken circuit. Meals paid, cushy hotel room  in Philly  (love Philly folk) use of the facilities, IE sauna/ spa rooms.

I don’t know if any one else has been approached to blog for a health organization before. If so, what does it entail? I just was watching a report about housing problems in the USA and gas crunch. It was a how to survive story. Being a natural cancer survivalist I listened to the half lame advise of Augmenting my income.

Augmentation has an entirely different meaning in breast cancer. Augmented breast are way different than augmented income. So I ponder how I as  cancer patient can get a little fun money without losing my face to ad sense or the like. I am not even promoting my own star on Stand up to cancer. I don’t want to spin my wheels. But the attraction of blogging, which I love to do anyway and get paid for my input seems right up my alley. However, I know I am walking into this situation a bit blind, not knowing what to expect exactly.

Feel reminiscent of my first breast doc appointment. Unsure of what was really going on at first. Any clue?  Let me know via a comment or a private e-mail what I should be looking out for.  ie copyright, picture on promotional items, I don’t need my sweetie to be the poster child for breast cancer. That is where I draw the line, but maybe you could help me draw some other lines that you have faced that I will be shortly confronted with. ( please don’t cringe that I ended the sentence with a preposition) I might have bigger fish to fry than I am aware of.


count down to 2 years of chemo

September 1, 2008
sunrise balloon

sunrise balloon

September 14Th is my second anniversary of Life Long Chemotherapy. It is also my one year Anniversary of my blog. I have been thinking about gifts for the “girls” at the outpatient treatment wing.  The nurses have become quite attached to me and I am grateful for their interest in the development of my little one. Last year I gave them all a tea cup and saucer with a card in it reading… thanks for the care. I feel I need to buy something that lives. small plant or flowering bush for all 14 staff.

Time for me to hunt down a thank you for everything gift. Any suggestions? I’ve got 7 days or 13 if I show up on the exact day, which is not my chemo day.

Indoor cherry tomato plants, cactus, miniture rose bush? time for some shopping


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