Well I made it. I finished my year of Herceptin last week. I knew the day would come, but I almost can’t believe it. I see my oncologist again in 3 months, and I admit I am looking forward to the break. Even better, I am getting my port out in 2 weeks. I can’t wait for that either. As for what is next, they tell me I am cancer free, but you all know how that goes, and how fearful it is to worry about a recurrance. But I am going to be positive, and try to be a bit more spontaneous in the coming year. I have been tied down to doctor appointments and check ups and physical therapy and recovering, that it is all I have been able to think about, but now I am going to attempt thinking past IBC and the possible recurrance.
Another big decision, dh and I decided recently to put my reconstruction on hold until my daughter is in kindergarten. She is 3, so about 2 years. My skin is so damaged from twice a day radiation that implants are not an option at this time anyway, so the only way to be reconstructed is with the TRAM or DIEP and that is such a huge surgery and recovery. It’s not sensible with 2 very young children and noone to help out while I am recovering. Part of me is nervous about the decision, but even more I am relieved because I don’t think I am up for such a large surgery so soon after the last one.
If you are Her-2 positive, ask your doctors about joining the Neratinib Trial. It was presented to me, and I have decided not to do it. But I think it will be very beneficial and help us combat cancer. My decision was a personal one, but I fully support the trial and believe it will help extend our lives even further.