MBCN was founded in 2004 by Jane Soyer and Nina Schulman. When diagnosed with advanced breast cancer, they experienced feelings of isolation from the very groups established to provide support. They felt the stigma of being a ‘failure’ in the breast cancer community. Their belief that cancer cannot be viewed as a disease from which one is either a ‘survivor’ or to which one has succumbed, fueled their desire to advocate for change.
As someone with metastatic breast cancer, I applaud Soyer’s and Schulman’s organization. It is self-described as:
a national, independent, patient-led, non-profit, advocacy group dedicated to the unique concerns of the women and men living with metastatic breast cancer.
For one thing, I’m glad tney recognize that men can also get breast cancer. For another, an organization like this makes me feel less lonely and isolated in the cheerful pinkness of National Breast Cancer Awareness Month. That’s because the board and members themselves are people with metastatic breast cancer. Their mission statement revolves around both awareness and education. Their website includes sections on Education, Developing Awareness, Support-Resources, Special Events, and News. MBCN even has an annual conference with this year’s conference being held on October 29 in Baltimore, MD.
Kudos to MBCN for filling a gap in breast cancer awareness and education. I applaud those who founded and/or are involved in MBCN.
Cross-posted to Just Enjoy Him.