Shirley Temple child star mother with cancer diplomat : 1st Celebrity to admit mastectomy

October 24, 2012

Shirley Temple Black child star mother with cancer ::

1st Celebrity to announce she had a mastectomy ::

“the surgery is no longer regarded as shameful and secret”

i found this book in the palo alto children’s library today.

i’m so grateful to shirley 

mod*mom

(click images to read Shirley’s story please)

Advertisements

finding hope beyond the pink ribbons (by Laurie)

July 20, 2012

My friend Sean Moore, Orit’s husband, posted the following note on FB. I reprint it here with his permission:

An enormous number of people have asked about donations in Orit’s name over the past 2 weeks. As many of you know, Orit was very academically minded and spent considerable time reading the medical literature and evaluating charities. We found that most cancer research charities had very high administration fees and poor impact factors. We came across some specific research, which has very good promise in helping find a cure. The Ottawa Hospital Foundation has set up a fund, which will be used 100% to go directly to this work. The discovery is very novel and was published in the world’s most prestigious scientific journal in June of this year. I will include a link to their latest publication and an easy to understand explanation:

http://www.fbmc.fcen.uba.ar/materias/qbiia/seminarios-2012/seminario-6-28-y-30-de-mayo.-hipoxia-y-autofagia/A-Nature%2012%20AOP%20may6.pdf

Here is a link to an easy to understand summary of the research:

http://www.ottawacitizen.com/health/discovery+offers+hope+cancer+heart+disease+miracle+drugs+with+video/6574966/story.html

Donations in Orit’s name can be made online by using the following link:

https://secure.e2rm.com/registrant/donate.aspx?TributeType=Memoriam&EventID=1819&LangPref=en-CA&Referrer=http%3A%2F%2Fohfoundation.ca%2F

The first page will capture the information regarding the person making the donation. Under “Donation Information”, please choose “Other” in the drop down menu and specify “As requested by family” in the space provided. Once the donation portion is completed, you’ll be directed to a page to indicate that the donation is being made in memory of Orit and to indicate if an acknowledgement should be sent. Tax receipts are immediately available after donation is done.

Donations can be sent by mail (indicate in memory of Orit Fruchtman) to
The Ottawa Hospital Foundation, 737 Parkdale Ave, 1st Floor, Ottawa, ON K1Y1J8.

Donations can also be taken by phone by calling (613) 761-4295.

1 in 8 women will get breast cancer. Research is the only path to finding better treatments and a cure to this disease, which has devastated our family and so many others across the world.

Love, Sean

“The true meaning of life is to plant trees, under whose shade you do not expect to sit.”  Nelson Henderson

This message had a very strong impact on me. Orit was a very smart woman. Sean is a doctor. I trust their judgement. And I agree with their priorities. 

Let’s do something great to honour a wonderful woman. Let’s help fund research that will effect real change. I donated. Will you?


Godspeed, Susan by Stella

February 11, 2012

I’ve been staring at this blank screen for days… ever since I got the news about Susan Niebur.  The words to pass the news, well, they just haven’t come…  I wish they didn’t need to.  

WhyMommy gave up her five year fight against Inflammatory Breast Cancer on Monday, February 6, 2012.  Her husband posted a touching final post on her personal blog, Toddler Planet.

It just doesn’t seem that mere words are sufficient to pay tribute to one such as Susan.  Well, maybe I feel that MY words aren’t sufficient.  After all, I only knew WhyMommy, the blogger, the cancer patient, the advocate.  The part of herself that she shared with the world at large.  I only met her once in 2007.  I am very sad to say I didn’t know her personally.  And yet, she changed my life.  

The words to memorialize her for the world just won’t come.  Others have been far more eloquent on that score than I could ever be.  The only words I have are those for Susan herself; words I couldn’t share with her while she was still here because mourning was not what I wanted between us at the end.

 

My very dearest, Susan – 

This is the second letter I’ve written to you.  It is no less heartfelt than the first.  Just over four years ago I was troubled to read that you thought you were dying.  I thought you might be giving up.  Heh.  How very, very wrong I was.  

You stood up from that low moment in time, brushed yourself off, and stepped out on faith.  You chose to live with cancer instead of die from it.  You defined cancer instead of letting it define you.  I read along with the rest of the blogosphere as you pushed at boundaries in the cancer world.  I marveled at your mad advocacy skillz.  I envied your bravery, your passion, your tireless drive.  I grabbed your coattails and held on… as Mothers With Cancer was born.  

I have been privileged to share in even that small portion of the changes you orchestrated in the breast cancer world, the eyes you opened, the women you educated, the lives you most likely saved.  You have been a mentor in all things:  advocacy, motherhood, loving, living.    In short, I am and have always been, awed by you.  

I will miss your voice, Susan.  I mourn the loss of your gentle guidance and insight.  I will never forget the lessons you taught me.  My world, the whole world, is better because of you.

Godspeed, my friend.

 

Here are a few pins from Susan.  They are pretty self explanatory.

 

 


Fighting a Smarter War Against Cancer: A Symposium

November 26, 2011

Lombardi ConferenceIf you live in the Washington, D.C., area and are interested in national health care issues, from health care reform to navigating cancer care: what every patient needs to know, please consider attending the FREE symposium next week at Georgetown Lombardi Comprehensive Cancer Center: “Fighting a Smarter War Against Cancer: Linking Policy to the Patient.”  It’s a great lineup, and the speakers are top-notch, from Senators, to Law professors to pharmaceutical companies, researchers, doctors, nurses, and pallative care.

Check the schedule, and see if you can attend all or part of this amazing opportunity at Georgetown.  And please – spread the word!