(First, I need to say that I’m not talking about Energy Boy; I don’t want to upset any of our loved ones.)
When it is dark enough, you can see the stars.
~ Ralph Waldo Emerson
It’s hard being a mom with cancer, particularly an aggressive cancer or a cancer at an advanced stage. We worry about our children — how is this experience affecting them? Will it change them? Will they never be quite as innocent as other kids who don’t face such troubles in their families?
And then there are the really big worries: Will I be here to raise him? Will he ever remember me when I wasn’t sick? Will he get as much mommy time as he needs before this disease takes me?
It’s a heavy burden, but I know there are heavier ones. My cancer is the worst thing that’s happened to me, but I know without a doubt that if EB had cancer, that would be even worse. We don’t want our children to feel pain. I wouldn’t want him to have to go through chemo or radiation or surgery, as I have. Yet, some children DO go through some/all of those, and perhaps even more painful stuff. We’re blessed that EB is very healthy right now and I pray that he stays that way. I don’t know what it’s like to be a mother whose child has cancer, but I can imagine somewhat.
Yesterday I received a very nice email from Ryan Stephens, the Marketing Coordinator of the MD Anderson Proton Therapy Center. I’m going to quote some of his email here.
Because of the way you’re able to bring Energy Boy and Absent Minded Professor to life on your blog, while also detailing your own cancer journey, I thought you would be a great advocate in helping us share the story of Matthew Rager – a 9-year old glioma brain tumor survivor – in hopes that other parents will feel empowered in the fight against childhood cancer.
I work at the MD Anderson Proton Therapy Center where Matthew received his proton radiation treatment and his mother Denise wanted to share their story, of struggle, advocacy and courage to offer support and hope to other families facing cancer. Their story, told by Denise through a video essay will premiere April 16th in New Orleans at the annual Mom 2.0 Summit (on Twitter @Mom2Summit or #Mom2Summit). The video will be available on YouTube for everyone to view and share immediately after the premiere. I’ve included you in an exclusive group of people who get to see the video a day early in case you want to share it on your blog after the premiere tomorrow.
I hope you’ll consider sharing their story and video on your blog (or via Twitter) after the premiere — as you will no doubt influence the lives of those who now or might some day need to make a decision for themselves or someone they love.
Please let me know if you have any questions or would like more information on proton therapy. In the meantime, more information can be found here: http://mdanderson.org/protonforkids
Thank you for your time!
I watched the video, twice, and cried like a baby both times. I related to the mom, for even if my son hasn’t been through what hers has, I think on some level, many of us moms have secret worries and fears about “what if . . . . ” happens to my child. I wanted to embrace this boy, this family, and then cheer them for what they had been through, what they had endured.
I love this video. It’s a very touching story of a boy’s journey through cancer. And not just his journey, but his family’s journey, and what they’ve done to help others afterward. Mostly, it’s a video about hope, and hope is nothing to sneeze at, my friends.
Please watch Matthew’s story. It will make you want to hold your child(ren) a bit tighter today.
Cross-posted to Just Enjoy Him.