friend as client or client as friend

September 18, 2008

The bell rang and I just thought it was my nanny forgetting her keys again, but no. There before my eyes was a dear friend that I had not seen in months. Later that same week my girlfriend I call Roomie called and had a watershed moment. Not a moment could be found after that, about wanting to get on the first plane to the states, because I missed my room-mate so dearly.

Just when I was feeling lonely because my silly little car had a flat tire and I did not have the strength to turn a lug nut. I waited out side my door for the road service person. While the gentleman fixed my flat tire, along strolls my Irish friend with a big hug and a how are you.  I retort: Fine, what are you doing in my neck of the woods today? She said:Didn’t you remember you have physical therapy. I said yes I just don’t know who is going to show up. She and I had a good laugh, because it was her. She is officially my new physical therapist. She said there was something great about having a friend as a client or was it client as a friend. Either way it was a win win situation for both of us.

I thanked the AAA road service gentleman, and we were on our way to have a good catch up chat  during the treatment and knowing that she gets paid to visit and I have a constant time to see her weekly. It’s a perfect situation. I am so happy I could burst!

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Stick to your goals!

September 10, 2008

Do not alter your ambitions to match the ambitions of others. Stick to your goals! Well that was my Horror-scope today, and as I screen through what other mom bloggers are writing about, I ponder if my blog is interesting enough or down right stale.

I hear the school children play baseball in the park below my house and I stop for more than a few moments and enjoy the sounds of cheering children, cheering for their classmates and fellow team members. Then I am really drawn in as if it is the world series, I found myself cheering.

Then it struck me…

This is my goal. Not only do I want to blog about breast cancer, but I also want to cheer for the other players- IE. researcher, docs and specialists and I want to be drawn in enough to find myself cheering for each and every individual on the field of cancer… people like  the children below in the park.

So I am taking the plunge and agreed to read the contract for Trusera. I hope to start cheering /blogging as soon as possible. For those who have be following this process, thanks for your input. I will look out for all the pitfalls that are suggested.


flying high on the good news

September 8, 2008

http://cancervisa.wordpress.com/2008/07/14/blood-levels-are-up-and-my-tumor-markers-are-down/

More good news, tumor marker only 52 point off of what is considered normal.  25 is normal, I have 77. I just wanted to share and spread the love and joy I am feeling. I can’t wait to let my family know that their diligent prayers are working!


count down to 2 years of chemo

September 1, 2008
sunrise balloon

sunrise balloon

September 14Th is my second anniversary of Life Long Chemotherapy. It is also my one year Anniversary of my blog. I have been thinking about gifts for the “girls” at the outpatient treatment wing.  The nurses have become quite attached to me and I am grateful for their interest in the development of my little one. Last year I gave them all a tea cup and saucer with a card in it reading… thanks for the care. I feel I need to buy something that lives. small plant or flowering bush for all 14 staff.

Time for me to hunt down a thank you for everything gift. Any suggestions? I’ve got 7 days or 13 if I show up on the exact day, which is not my chemo day.

Indoor cherry tomato plants, cactus, miniture rose bush? time for some shopping


cancer survivor wins a gold medal in swimming

August 26, 2008

Yes, it is true a dutch man wins Gold, but also wins battle over cancer (lukemia), which in my mind is much more important.


While waiting for my chemo

August 11, 2008

I waited and waited over an hour past my official appointment time until my labs came back.  I was glad to see the doc but shamed that I had to tell her I fell off my bike.  She shook her head and could not believe I was biking in such strong winds. She even took a careful walk instead of getting on her own bike yesterday.  I was just grateful she did not ban me from my only mode of transportation, my bike.  We have been having such a good vacation that I could not worry that it took close to 5 hours to finish a 1-2 hour normal treatment. I asked my loving hubby to go to the news stand and buy me a search a word puzzle book in Dutch of course,  I pretended to still be on the beach and puzzled the afternoon away, no sense in complaining.

I was not even jealous of the lady next to me getting a full facial. I have only 3 days and I’m back to the beach house knowing my numbers are 92 and 14. I think I will even have a sangria when I get to the sandloper restaurant on the beach as a celebration. 

I did use my cancer no card for  the Amsterdam Parade. I would have to shake too many hands and have to explain my thin curly hair to too many outsiders.


Cancer info-booth outside the outpatient cancer department

July 14, 2008

As a curious soul I entered a luxuriously mahogany wooded booth with two functioning computers with all the favorites hit in for cancer patients. I asked the women behind and office looking inner room what was the meaning of all this anyway. You see I have a nanny who might want to know exactly what is happening to me, and a 3 year old who might need a bit of explanation now that she is asking questions, and acting as if she is dead and saying “I am dead”. I have been rather freaked out by her comment about death, so was I in the right place?

I got shuffled off to a summary in English that she gladly printed out for my Au-pair and said she would make further contact via e-mail as soon as possible, or whenever her colleague returned from the lunch break. She her self seemed quite flustered, maybe because I was her first “customer” with a demand.

I went back into the department where I get outpatient care, and explained that I did not want a book about kids with cancer, or a free backpack, but a book about why mommy has cancer. I dumb founded the nurse who was also new, and eager to help. I took the pamphlet anyway to make her feel better, but it really was not what I was after. ( In fact NO I don’t want to scare the living daylights out of my daughter, she is already empathizing with my pains and now itchy skin telling me she has it too.)

I don’t need to reinforce that she too could at this very moment have cancer by giving her a book meant for children with cancer. God help me if she has cancer too at such a young age it would destroy my psychological well being.

My child needs a picture book in cartoon form of her mommy getting medicine in a tube from a doctor. She does not need to understand what cancer cells are and what chemo does. Just a book about the process of what does Mommy do when she goes to the hospital for the day. Does she get time to talk to the doctor and nurses or do puzzles like she gets to do in the play area?

Gals, I think it is time to think of themes and I’ll get back to doing some sketching and making storyboards. I found a cheap ringed watercolor paper when I have finalized the ideas. If a book is not provided for me in the next 3 weeks, I will make my own, thank you very much. I have made other home made books about how the wedding for my brother was going to be, I can make one about a subject I am also very familiar with. Any takers on subjects or simple analogies for a 3 year old? Let’s hear them!